Miami Republican Sen. Alexis Calatayud recently filed a bill that would establish a Parkinson’s Disease Research Program to support innovative research and provide caregiver assistance to those with the disease.
Parkinson's disease is a chronic and progressive neurological disorder that affects movement and other bodily functions. Commonly viewed symptoms include tremors (involuntary shaking) in the hands, arms, legs, jaw, or head.
Often occurring around the age of 60, Early-onset Parkinson's disease can develop in people under 50 years old.
Parkinson's disease affects over 1 million Americans and 10 million people worldwide. Also, about 90,000 new cases are diagnosed each year in the United States.
Actor Michael J. Fox and legendary late boxer Muhammad Ali are two well-known figures who were diagnosed with the disease. Notably, there is currently no cure for Parkinson's disease.
Alexis Calaytud's bill, SB 1800, a Parkinson's Disease Research Progam would be established through the Florida Department of Health (DOH). The bill would also require DOH to create a registry for people in the program.
Moreover, DOH would create a Parkinson's Disease Research Advisory Board consisting of the following representatives:
- Leading research institutions in the state
- Parkinson's disease advocacy organizations
- Caregiver support groups
- The medical community specializes in neurological diseases
Through SB 1800, the Florida Legislature would appropriate funds from the General Revenue Fund to the Parkinson's Disease Research Program for FY 2025-2026. Specifically, 20 million dollars would be awarded through competitive grants to state universities, research institutions, and medical centers actively involved in Parkinson's disease research.
Another five million dollars would be allocated to establish and expand programs that support caregivers of individuals living with the disease, including respite care, training, and mental health resources.
The bill says priority would be given to innovative therapies and projects trying to find a cure for the disease.
Additionally, the bill states grant recipients would be required to submit an annual report to DOH detailing the progress of funded research, outcomes and measurable impacts of caregiver support programs, and additional recommendations to improve the effectiveness of the program.
If passed, SB 1800 would take effect on Oct 1, 2025.
